Tag: Usher syndrome news

USHDAY 2019

As we look back on USHDAY 2019, Usher Syndrome Awareness Day, we reflect on how much was gained in such little time. First started in the US five years ago by the Usher Syndrome Coalition, this day is now celebrated globally on the third last Saturday of September. Why was this day chosen by the… Read more »

Patients First

By: Daniel de Boer First and foremost, CUREUsher has created a welcoming community for everyone affected by Usher syndrome – patients, loved ones, caregivers, and the medical community. It means a lot to me that I am able to share my story here. As the father of a son with a cystic fibrosis, I am… Read more »

The Hearing Fund UK 8th Gala benefitting CUREUsher

The recent Hearing Fund UK annual gala, held in Leeds at the Royal Armouries, featured a wonderful evening of entertainment with Merrill and Justin Osmond, and friends. CUREUsher was selected to benefit from the proceeds of this year’s event to support our work to fund research into Usher syndrome, the leading genetic cause of deafblindness.… Read more »