NAME: Meagan Moore
AGE: 32 years old
WHERE ARE YOU: Bend, Oregon
COMMUNICATION METHOD: Oral
YEAR OF USHER DIAGNOSIS: 2011
USHER TYPE: 2A
FAMILY/CHILDREN: I married my high school boyfriend, Joel, and we have three amazing kids. Jedidiah who is 6, Mordecai who is 3 and Myra who is 1.
CAREER: I worked as an Registered Nurse for 6 years, but have been a stay at home mom for the past two years.
HOBBIES: Kayaking, hiking, reading, biking, crafts and seeking adventures with my kids.
NAME THREE WORDS TO DESCRIBE YOU: Loyal, curious, and fun-loving
WHAT ARE YOU SURPRISINGLY GOOD AT: Making a mess with my kids
WHO IS SOMEONE YOU ADMIRE AND WHY? My father in law. He was always kind and loving toward family and friends. He was always friendly and would talk with anyone. He became an amputee in his youth and he taught me a lot about how to face the challenges life throws at us. He had a way of saying what needed to be heard, but did so in a humble and kind way. He now has Alzheimer’s disease and it has been difficult to see him decline, but whenever I make a corny joke that he used to use with me, he still responds with his cheerful chuckle.
WHAT ARE YOU HAPPIEST DOING? Caring for and having fun with my family. I love making my kids laugh.
WHAT WOULD BE YOUR PERSONAL MOTTO: “For we walk by faith, not by sight” 2 Cor 5:7
TELL US A LITTLE ABOUT THE ATTACHED IMAGE: My family and I were blessed to take a trip to Hawaii this summer. Since being diagnosed with Ushers, I have become very thankful for every sunrise, sunset and I just marvel at the amazing beauty that surrounds us. In the photo, I am with my oldest and youngest, sitting by the ocean on the east side of Oahu island watching the sunrise (we did this every day we were there).
IF YOU WOULD LIKE TO SHARE ANY PARTICULAR USHER STORY YOU CAN DO SO HERE :
I remember being diagnosed and feeling crushed. The “B word” (blind) was so hard to digest, to say it out loud, and to accept. I was told I’m going blind. And with all the emotions that came with it, so did questions, endless questions (e.g. can I keep working, when will I have to stop driving, will I become even more of a burden to my family…) but I remember asking and deciding with my husband that it was time to start a family. I was never sure if I wanted kids, or how many, but I knew my husband always wanted children. But not until I was diagnosed did I realize my life was not going to be fulfilled without children…so we decided to try to start a family. And now I have THREE kids that I cannot imagine life without! I still have my doubts about being a “capable” mom due to Ushers, but I have no doubt about how much meaning my kids have given my life. I love being a mom. I gained a perspective on life that I never would have had without living with Ushers. Living with vision loss and hearing impairment can be very difficult at times, but it has also helped me to appreciate the beauty in the world around me and in my life .